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Twin-to-Twin Transfusion Syndrome - Fetal Health …
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Twin to Twin Transfusion Syndrome (TTTS) Awareness …
WebJul 3, 2024 · 3 July 2024. Clare Vallely and Paul Walsh praise staff at St George’s – home of the Twins Trust Centre for Research and Clinical Excellence and call for more research into TTTS. “We arrived in St George's in February 2024 as a referral from Belfast for Twin-to-Twin Transfusion Syndrome (fetal laser surgery is not offered in Northern Ireland). WebIncreased TTTS awareness and research about its corresponding impacts can ensure appropriate patient and family support at all phases of the TTTS experience. Keywords: Twin-to-twin transfusion syndrome (TTTS), Qualitative, Emotions, Psychosocial, Lived experience Background Twin-to-twin transfusion syndrome (TTTS) is a rare but WebOften, rare disease patients and advocates can feel adrift and isolated, but many people in this community are doing incredible things to turn the tide for rare disease. Get involved in the #TurnTheTide4RAREDisease conversation across social media, connect with me on LinkedIn, or email [email protected] to share your news about … dick sporting goods richfeild